I would like to take this opportunity to share a few thoughts on this illness. I have dealt with it for many years and have come up with a what I call a"standard" for me to live by. I thought I would share this for what it is worth.
When you are initially diagnosed the first step is to make a choice to either cope or live with this illness. The difference is if you cope with something you look at it as a daily hindrance, but must do it to accomplish whatever you set out to do.
In living with something you accept it fully as a lifestyle and embrace it. Accept it as something you want to do to improve your lifestyle and quantity of life.
This may seem small when you first think about it but let it soak in. If you are coping then you are letting it affect your attitude and causing a sense a of dread. I actually think that this may be the roots of some of the depression and anxiety within our illness.
If you are living with it then you look forward to doing what ever is necessary because you know it will give you that extra time with your loved ones and your friends. It gives you a sense of being the master of your own fate. It makes you appreciate the good days and accept the bad as a way of life.
I know this is not much but I thought that if someone might get a little understanding of what I am trying to say it would be worth writing.